July 27, 2011

I did something really stupid...forgetting to order a refill of my Enbrel. Saturday morning I opened the fridge to get a syringe and I was out. So I called the pharmacy and they said they could have it in Tuesday. By Monday night I was in excruciating pain that had hit me like a brick wall. Tuesday the medicine didn't come in so I had the pharmacy call around to all the other Kaiser pharmacies in San Diego to find the medicine. I felt that desperate, like a drug addict who can't live without. My husband was at a business lunch downtown so he was able to pick up the Enbrel at the hospital and bring it home. Unfortunately the drug effects aren't immediate but I'm sure by tonight (Wed.) I'll be feeling a little better, less grumpy, in less pain.

Without the medicine I am unable to play the piano, my temper is so short it's terrifying my kids, and it's hard to make myself eat. I am amazed at how much pain I would have if it were not for this miracle drug. The pain with this type of arthritis can be completely overwhelming.

July 23, 2011

July 19, 2011

It's the humidity and the cold that get to me.

I just went on a vacation to a dry climate and felt great, until it got cold one night. When I'm at the beach, even when it's hot outside, I am in pain because of the humidity.

I told my husband we may have to leave our gorgeous San Diego and move to Arizona because it's hot and dry there. I don't think I'll be able to convince him.

July 16, 2011

Maddie is doing really well this summer. She joined the summer swim team and works out every day. Her heel pain has improved and she was able to go hiking during our vacation without complaining once. She absolutely loves ballet, but if the flair-ups continue and the heel pain gets worse she might give that up and just do the swimming. She doesn't ever hurt in the pool.