May 28, 2011

It is so strange not having consistency. Why do I feel almost normal one day and the next I feel terrible pain? Sometimes I'll have differences within the same day. I can be walking around fine all day, then I stand up from the dinner table in the evening and my knees and hips decide to take a vacation making me walk like an old lady. I am a plan ahead type person, yet these days my plans have to include a "maybe" factor depending on how I feel when I wake up that morning.

This week I felt wonderful on Monday, Tuesday, and Wednesday. Then it all changed when I woke up Thursday morning. My hands and fingers were swollen, unable to make a fist. I was in terrible pain. Friday was the same. Saturday morning, today, I received the Enbrel injection and with the exception of the exhaustion I feel on injection days, I feel a little better. I made it over to the church to practice the organ. One hour passed quickly. My fingers and ankles felt no pain. How sweet it is.

May 21, 2011

I was so excited to find this. An arthritis pain management diary is the perfect tool to use when explaining arthritis pain to a Rheumatologist. This type of pain can be very difficult to describe. I've found myself saying things like "I'm experiencing labor pains in my elbow." Of course to a Rheumatologist who hasn't given birth that means absolutely nothing. Little tools such as this diary can be helpful for arthritis patients because blood tests can't reveal the amount or type of pain we're experiencing.

May 05, 2011

My sister has been having strange arthritis symptoms in addition to shooting pains in her left arm and leg. After weeks of visits with neurology specialists she was sent to a rheumatologist. Because of my diagnosis the doctor tested her for HLA-B27 and she was positive. We're not sure exactly what that means yet. She could have Reactive Arthritis or she could simply have a virus that is causing temporary joint inflammation.  She is in a lot of pain and it makes me sad for her. It is so strange that within the same year we are both discovering this gene and the arthritis that comes with it.